How to help Helena

Donate

In the next years we are going to be facing a high volume of costs purchasing all sorts of machinery to improve Helena’s life, such as a wheelchair or a respiratory machine. So it would be such a big help for us if you could contribute, no matter how small. Thank you.

Sign the petition to make Nusinersen available to terminally ill children with Spinal MuscularAtrophy

Knowing there is a safe and well-tolerated drug which isn’t available is hard to bear. Please read more at thefastmovement.org. This drug is showing fantastic results & means that children who never expected to achieve milestones are achieving them for the first time! It is keeping them alive! Early intervention is vital to those with SMA so more of their movement abilities can be saved. With no alternative drugs available, children with SMA can’t wait any longer for treatment!

Please sign this petition here: petition.parliament.uk/petitions/121253

If you could also tell your friends to do it it would be much appreciated.

Spread the word

Tell your friends and family about us – you never know who we could reach. What if someone you know is a person that can really make a difference? We have so little to lose and so much to gain.

We have created some flyers and posters for anyone who can print them and spread them around. These can be downloaded below:

Follow us and Spread the word

We have a Facebook page and Twitter handle.