My name is Helena and when I was 8 months I was diagnosed with SMA, this is my story...

Help For Helena
a little about..


Helena was diagnosed SMA on 11th November 2015. SMA is a genetic condition. When this condition was first discussed with us (her parents), we had never heard of it and no one in either of our extended families has been affected by it. We created this page to create awareness of Helena, of SMA and to tell the story of our journey.

Follow Us on Facebook