Posts by Charlotte Russell


Treatment for Helena!!!!

Hoooooooooorayyyyyyy!!!!! Well finally it’s here, the day we’ve fought for pretty much since Helena’s diagnosis and not a day too...


A little sibling for Helena

Well, it’s been a while since I last updated the website and an extremely busy time for us. In November...


SMA Awareness Week 2016

This week in the UK it’s SMA awareness week. I shall be posting facts about SMA all week in order...



The NHS is great, but unfortunately they are in crisis and can’t fund everything that will be needed to care...

Hope for Helena

Hope for Helena

  Everyday when I would wake up I would check social media and long for the day when I would...



Helpful Equipment:   Squiggles Chair This chair offers supportive seating for feeding and playing. The seat can be tilted to...



In this section I will compile a list of the toys that I’ve found that Helena has quite enjoyed playing...


Helena moves to Great Ormond Street

We first asked for transfer to Great Ormond Street Hospital for Helena on the 4th April. On the 21st of...


Academy Radio Interview 9/6/16

Here is my Academy Radio Interview with Debbie Day for anyone that wasn’t able to listen live


Thanet Stage School Fundraising Event

Many thanks to the Miss Josephine and the wonderful ladies of Thanet Stage School for holding a fundraising toy sale...

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